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SNOMED CT and the Tower of Babel
July 2003 Paul A. Raslavicus, MD
It was in 1963
that as a pathology resident I first used SNOP topography and morphology
axes to code a surgical pathology specimen. Forty years later to
the day on June 30, 2003 I proudly signed on behalf of the College
an agreement with the National Library of Medicine (an agency of
the National Institutes of Health) to make SNOMED CT freely available
to all who labor in health care in the United States. With this
act we honor the many physician colleagues and staff who have worked
for four decades to build the Systematized Nomenclature of Medicine
to world eminence. Their outstanding contribution, the agreement
with the U.S. government, and our working relationship with the
National Health Service of the United Kingdom bring down the Tower
of Babel that heretofore has characterized health care codification
attempts to build a robust computerized patient record.
With this stroke
of the pen, a seismic shift has occurred in the way medical information
will flow henceforth. SNOMED CT is now positioned to be the universally
acknowledged terminology standard that permits easy computer interoperability
and exchange of medical information. SNOMED CT, considered by many
to be the most comprehensive multilingual clinical reference terminology
in the world, is about to become embedded in the culture of health
care delivery in this country, eclipsing most other codification
schemes. The power of our creation is such that we can stop thinking
about how to collect information and start thinking about interpreting
and applying it. Many speeches have been made and many papers have
been written on health care quality and patient empowerment, on
accuracy over time and safety first, but I offer here this evidence-based
assessment: We are positioned for change, and SNOMED CT is the engine
that will
drive it.
The five-year
government contract makes the English and Spanish editions of the
SNOMED Clinical Terms available free through the National Library
of Medicine’s Unified Medical Language System Metathesaurus.
Any public or private entity in the U.S. will have access to it
for health care delivery, research, public health, education, and
statistical reporting. In announcing the signing of the contract,
Department of Health and Human Services secretary Tommy Thompson
called it a “wonderful groundbreaking agreement” that
will “prove invaluable in the automated exchange of clinical
information needed to protect patient safety, detect emerging public
health threats, better coordinate patient care, and compile research
data for patients in clinical trials.”
SNOMED CT will
also be available from the College. We will continue to maintain
it and retain ownership, and we’ll direct our attention to
developing products and services to support its effective use.
What began as
a simple morphology-topography code for pathologists has grown to
incorporate terminologies defining all of medicine. Our collaboration
with the UK’s National Health Service produced the current
SNOMED CT, which combines our strengths in inpatient care with the
NHS’ knowledge of outpatient needs. This terminology makes
it possible to capture, share, and aggregate health data across
specialties and sites of care with precision
and consistency.
SNOMED CT easily
encodes the entire patient-physician interaction process from symptomatology
to objective findings, to diagnoses, to drug therapy, iatrogenic
events, and so forth. The terminology is detailed, specific, comprehensive,
diverse, controlled, and interconnected. Its structure is hierarchical
and relational, facilitating data extraction for epidemiologic and
research studies. SNOMED is a powerful tool for standardizing reports
to cancer registries and public health authorities, for telemedicine,
outcomes analysis, practice guidelines, clinical benchmarking, and
genetic databases. All this translates to enhanced patient safety,
improved care delivery, and demonstrable savings in the cost of
care.
And there is
more.
To support encoding
of the entire patient encounter, SNOMED CT offers 344,000 concepts
with unique meanings and formal, logic-based definitions organized
into hierarchies. It incorporates 913,000 English-language descriptions
or synonyms providing flexibility in expressing clinical concepts,
and 1.3 million semantic relationships to ensure consistent data
retrieval. SNOMED CT cross-maps to ICD-9-CM and is compatible with
all major messaging standards (for example, HL7, DICOM, XML, ISO).
It incorporates LOINC (Logical Observation Identifiers Names and
Codes), the database many of us use to share lab results.
Government entities
and health care organizations in more than 30 countries have adopted
SNOMED CT. This nomenclature eliminates language barriers, offering
a sustainable, scientifically validated communication tool that
speeds understanding among diverse health care systems.
Although SNOMED
CT is used worldwide by integrated delivery networks, health care
provider organizations, medical research organizations, government
entities, content providers, pharmaceutical manufacturers, biotech
firms, and veterinary practices, many pathologists are still using
SNOP or older versions of SNOMED. As health care enterprises adopt
SNOMED CT more broadly, pathology data will have to be encoded in
SNOMED CT as well so it stays synchronized to the electronic patient
record. The NLM contract should ease that transition. While the
College provides software bridges for pathologists to protect legacy
data, increasing numbers of laboratory information system vendors
already incorporate SNOMED CT into their products.
SNOMED CT will help researchers understand how caregivers think
when they structure patient care and how they apply logic to disease
processes. We are truly not far from the time when patients will
carry their medical records on secure, updatable cards, cards that
will guarantee that the same data are brought to each clinical encounter.
As primary care physicians, researchers, public health officials,
and quality gurus see the many ways that electronic health records
will serve patients and the science of medicine, we can expect that
total health care electronic encoding will evolve into the accepted
standard.
These imperatives
will drive the use of electronic records in the direct care of patients,
now already visible in the avant-garde hospitals in our country.
Computers in most institutions are still used only for financial
record keeping and within the laboratories. Computerized recording
of patient encounter information and order entry for laboratory
tests, prescriptions, and radiologic exams, for example, are virtually
untapped areas. Our challenge now is to advocate for quality and
encourage a cultural change within medicine to bring electronic
records into every patient encounter.
When the Committee
on Nomenclature and Classification of Disease began its work on
SNOP in the early ’50s, and as we since then invested intellectual
and financial capital in SNOMED, we did not know that the pieces
would fall into place in the summer of 2003. Our reward was not
wholly predictable, but now we stand proud of having developed SNOMED
CT for the health care needs of the world. We know we cannot hope
to recoup our past investments, and the government contract is not
likely to cover the entire cost of maintaining the program. But
we always must remember our calling as physicians dedicated to patient
service. We must be secure in knowing that as a learned profession
we must give our knowledge and our work to those who follow us,
just as those who have preceded us gave knowledge to us.
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